- Advocacy Organizations
AG Bell – Association for the Deaf & Hard of Hearing
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- Advocacy Organizations
Global Genes
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- Advocacy Organizations
Usher Syndrome Society
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- Advocacy Organizations
Usher Syndrome Coalition
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- Advocacy Organizations
Norrie Disease Association
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- Advocacy Organizations
Hearing Loss Association of America
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- Advocacy Organizations
Hearing Health Foundation
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- Advocacy Organizations
Hands & Voices
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- Advocacy Organizations
Association of Late Deafened Adults
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- Advocacy Organizations
Acoustic Neuroma Association
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- Advocacy Organizations
National Society for Genetic Counselors
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- Advocacy Organizations
Rare University: Genetics Concepts for Rare Disease Patients and Families
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- Advocacy Organizations
Newborn Hearing Screening: National Institute of Health
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Sing Registry
How do I know if my hearing loss is genetic?
Together with leading clinicians, researchers, and their institutions, Akouos is building the SING (SensorINeural Genetic) hearing loss registry. The aim of the registry is to establish the global infrastructure required to assess hearing loss genotype-phenotype links and intervention outcomes in a prospective and longitudinal manner.